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Monday, 06/17/2019
First scientific Workshop for patients with bronchiectasis
The workshop was sponsorized by SEPAR pacientes, GlaxoSmithKline (GSK), Mundipharma and Chiesi and it was organized by the Dr. Torres bronchiectasis group at Hospital Clínic
Ninety five patients attended the last 31st of May the first scientific Workshops addressed to patients who suffered from bronchiectasis. The Workshops program included the inaugural welcome message from Dr. Antoni Torres, the head of the respiratory ICU and bronchiectasis monographic consultation at the Hospital Clinic and Dr. Joan Albert Barberà, Head of Pneumology Service of the Hospital Clinic. Dr. Carmen Hernández, as responsible for “dispositivo transversal de hospitalización a domicilio” also participated during the opening. Then, the program included three scientific presentations. The first was performed by Dr. Rosanel Amaro, coordinator of the bronchiectasis monographic consultation at the Hospital Clinic, and covered a general introduction to clinical concepts and important recommendations for patients with bronchiectasis. Victoria Alcaraz, specialist in respiratory physiotherapy focused in bronchiectasis, strengthened the importance of an active life as well as gave physiotherapy advices to facilitate expectoration at home. Finally, Dr. Laia Fernández-Barat, coordinator of the research microbiology laboratory, introduced a research ongoing project recently funded by public organisms and its potential applications.
Ultimately, Marta Almagro, a very involved patient diagnosed from bronchiectasis when she was a child and María Rodríguez, representative of the association of patients with hypertension, highlighted the importance of gathering efforts and constituting an association of patients with bronchiectasis to respond to the frontline demands of this community.
The workshop was dynamic, participative and successfully evaluated by all participants. All attendees were invited to ask questions along the different sections of the workshop. Dr. Antoni Torres and Dr. Alvar Agustí, head of the Institute of Respiratory at Hospital Clinic, closed this interesting experience that allowed us for the first time to exchange knowledge and opinions between patients affected with bronchiectasis and clinical/research professionals’ experts in the field.